Selasa, 30 Juni 2015

Free Ebook The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition, by Isabel Stenzel Byrnes

harlanduldericojohnaroger | Juni 30, 2015

Free Ebook The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition, by Isabel Stenzel Byrnes

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The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition, by Isabel Stenzel Byrnes

The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition, by Isabel Stenzel Byrnes


The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition, by Isabel Stenzel Byrnes


Free Ebook The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition, by Isabel Stenzel Byrnes

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The Power of Two: A Twin Triumph over Cystic Fibrosis, Updated and Expanded Edition, by Isabel Stenzel Byrnes

About the Author

Isabel Stenzel Byrnes works as a community outreach coordinator at Lucile Packard Children’s Hospital at Stanford University in Palo Alto, California. Anabel Stenzel passed away on September 22, 2013, after a long struggle with cancer.

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Product details

Paperback: 360 pages

Publisher: University of Missouri; First Edition, Updated and Expanded Edit edition (October 14, 2014)

Language: English

ISBN-10: 0826220320

ISBN-13: 978-0826220325

Product Dimensions:

6.1 x 1.6 x 9.2 inches

Shipping Weight: 1.2 pounds (View shipping rates and policies)

Average Customer Review:

4.5 out of 5 stars

32 customer reviews

Amazon Best Sellers Rank:

#1,595,125 in Books (See Top 100 in Books)

I agree with what Tiffany wrote before me. I'm also an adult with CF, just hit 30. I had considered writing my own little CF memoir, but these girls did such an awesome job with their vivid depiction of their experiences, thoughts and emotions throughout their lives, they covered it all. Their journey brings you into the world of all stages of CF from everyday maintenance to near death experiences, how it's changed since the 70's, the treatments, the pain and the joy in meeting others in this special CF club. As others have said, this book covers so much more. With a German father and Japanese mother, they take you through life as biracial twins in America and Japan, their travels around the world, and the amazing support they found in family and eachother, then much much later boyfriends. Their story is brutally honest about their experiences, and they've had some tough ones. What I loved most was this honesty and ability to infuse some funny in their situations and not take themselves too seriously. It's refreshing. The narration of their mother was hilarious, even though she's their biggest supporter it seems. My only complaint is I'm jealous they went to CF camp and met Bob Flanagan, the camps were gone by the time I knew they existed.Brilliant girls, thank you!

Having known and loved Ana and Isa for at least 15 years and being a mom of one of their close friends who is an adult with CF I am so grateful to them for writing this book. The raw honesty and intimacy of sharing their lives is unusual. We live with CF in so many hidden ways. It is behind closed doors where much of the struggles occur whether being the disease processes, treatments or personal grieving. Being able to share a true picture of what it is like to deal with CF or any life threatening chronic illness is difficult at best. You know when people ask, how is it? We usually say, "fine". But the story about CF is far more complicated than, "fine". Thank you Ana and Isa for telling your story that is so readable so that I can share it with my family. Perhaps this will give them a glimpse into our lives that is so hard to share in words other than, "fine". May it be read widely and a greater understanding into the lives of those that live with these challenges be better understood.

This may be one of the clearest views into the truth of what life is like with Cystic Fibrosis. Ana and Isa are candid, heartfelt, and funny as they share their struggle together with CF. This is a great book about two incredible and wonderful sisters and I can not recommend it enough!

This is a compelling book. I bought it because my son has struggled with cystic fibrosis and also had a lung transplantand has been in touch via email with Ana and Isa. This book is one that will surprise many people. It will be of value to paramedics and health workers as well as people interested in challenges both health and inter-racial, and the general public. What remarkable people and how honestly they talk about their experiences. There is no glossing over the difficulties but their devotion to each other and their family and their determination to stay positive is very real to the reader.Helen Evans

I personally know the authors who are the best of the best. Two more intelligent, thoughtful, and brave women do not exist.

This story brought me to tears and left me smiling. Isa and Ana are talented storytellers and I would highly recommend this book for anyone - especially those wanting to know more about cf or transplants.

I enjoyed reading about the struggles and triumphs of the Stenzel twins. It's well written, and gives you an idea of what it was like to grow up with CF in the 70s.

Amazing book!

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